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What makes the palliative care initial encounter meaningful? A descriptive study with patients with cancer, family carers and palliative care professionals
dc.contributor.author | Goni-Fuste, Blanca | |
dc.contributor.author | Pergolizzi, Denise | |
dc.contributor.author | Monforte-Royo, Cristina | |
dc.contributor.author | Julià-Torras, Joaquim | |
dc.contributor.author | Rodríguez Prat, Andrea | |
dc.contributor.author | Crespo, Iris | |
dc.date.accessioned | 2023-11-07T10:18:20Z | |
dc.date.available | 2023-11-07T10:18:20Z | |
dc.date.issued | 2023 | |
dc.identifier.citation | Goni-Fuste, Blanca; Pergolizzi, Denise; Monforte-Royo, Cristina [et al.]. What makes the palliative care initial encounter meaningful? A descriptive study with patients with cancer, family carers and palliative care professionals. Palliative Medicine, 2023, 37(8), p. 1252-1265. Disponible en: <https://journals.sagepub.com/doi/10.1177/02692163231183998>. Fecha de acceso: 7 nov. 2023. DOI: 10.1177/02692163231183998 | ca |
dc.identifier.issn | 0269-2163 | ca |
dc.identifier.uri | http://hdl.handle.net/20.500.12328/3857 | |
dc.description.abstract | Background: The palliative care initial encounter can have a positive impact on the quality of life of patients and family carers if it proves to be a meaningful experience. A better understanding of what makes the encounter meaningful would reinforce the provision of person-centred, quality palliative care. Aim:To explore the expectations that patients with cancer, family carers and palliative care professionals have of this initial encounter. Design: Qualitative descriptive study with content analysis of transcripts from 60 semi-structured interviews. Setting/participants: Twenty patients with cancer, 20 family carers and 20 palliative care professionals from 10 institutions across Spain. Results:Four themes were developed from the analysis of interviews: (1) the initial encounter as an opportunity to understand what palliative care entails; (2) individualised care; (3) professional commitment to the patient and family carers: present and future; and (4) acknowledgement. Conclusion: The initial encounter becomes meaningful when it facilitates a shared understanding of what palliative care entails and acknowledgement of the needs and/or roles of patients with cancer, family carers and professionals. Further studies are required to explore how a perception of acknowledgement may best be fostered in the initial encounter. | ca |
dc.format.extent | 13 | ca |
dc.language.iso | eng | ca |
dc.publisher | Sage Journals | ca |
dc.relation.ispartof | Sage Journals | ca |
dc.relation.ispartofseries | 37;8 | |
dc.rights | © The Author(s) 2023. | ca |
dc.subject.other | Cures pal·liatives | ca |
dc.subject.other | Aliança terapèutica | ca |
dc.subject.other | Pacients | ca |
dc.subject.other | Cuidadors | ca |
dc.subject.other | Càncer | ca |
dc.subject.other | Investigació qualitativa | ca |
dc.subject.other | Cuidados paliativos | ca |
dc.subject.other | Alianza terapéutica | ca |
dc.subject.other | Pacientes | ca |
dc.subject.other | Cuidadores | ca |
dc.subject.other | Cáncer | ca |
dc.subject.other | Investigación cualitativa | ca |
dc.subject.other | Palliative care | ca |
dc.subject.other | Therapeutic alliance | ca |
dc.subject.other | Patients | ca |
dc.subject.other | Caregivers | ca |
dc.subject.other | Cancer | ca |
dc.subject.other | Qualitative research | ca |
dc.title | What makes the palliative care initial encounter meaningful? A descriptive study with patients with cancer, family carers and palliative care professionals | ca |
dc.type | info:eu-repo/semantics/article | ca |
dc.description.version | info:eu-repo/semantics/publishedVersion | ca |
dc.rights.accessLevel | info:eu-repo/semantics/openAccess | |
dc.embargo.terms | cap | ca |
dc.subject.udc | 61 | ca |
dc.identifier.doi | https://dx.doi.org/10.1177/02692163231183998 | ca |
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