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dc.contributor.authorRodríguez Prat, Andrea
dc.contributor.authorPergolizzi, Denise
dc.contributor.authorCrespo, Iris
dc.contributor.authorBalaguer, Albert
dc.contributor.authorPorta-Sales, Josep
dc.contributor.authorMonforte-Royo, Cristina
dc.date.accessioned2022-07-06T16:20:37Z
dc.date.available2022-07-06T16:20:37Z
dc.date.issued2022
dc.identifier.citationRodríguez Prat, Andrea; Pergolizzi, Denise; Crespo, Iris [et al.]. Control in patients with advanced cancer: an interpretative phenomenological study. BMC Palliative Care, 2022, 21, 97. Disponible en: <https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-022-00984-7>. Fecha de acceso: 6 jul. 2022. DOI: 10.1186/s12904-022-00984-7.ca
dc.identifier.issn1472-684Xca
dc.identifier.urihttp://hdl.handle.net/20.500.12328/3356
dc.description.abstractBackground: In the context of life-threatening illness, loss of control is argued as a source of suffering and loss of perceived dignity, whereas having control over the dying process has been seen as a way of maintaining personal independence. Little is known about the meaning of control from the patients’ perspectives. Thus, the aim of this study was to explore how patients with advanced cancer understand control, in terms of underlying beliefs, attitudes, and expectations consistent with self-efficacy, in different dimensions of their life, their illness, and their healthcare. Methods: We conducted semi-structured qualitative interviews using an interpretive phenomenological analysis approach. Patients with advanced cancer from an oncology unit and a palliative care unit from Barcelona (Spain) were recruited. The inclusion criteria were a) ≥ 18 years old; b) fluency in Spanish or Catalan; c) outpatients diagnosed with advanced cancer; d) Eastern Cooperative Oncology Group (ECOG) between 0 and 3; e) judged by their physician or nurse to be emotionally stable; f) considered to have control over their illness and circumstances according to their responsible physician; and g) signed informed consent. Results: We interviewed eight participants (ages ranged from 29 to 70 years, six were female). Two themes were identified: 1) factors that influence the perception of control, with subthemes: uncertainty about future suffering, character traits underlying a need for control; sense of lack of care as a source of loss of control; and 2) perceiving control over an uncontrollable illness, explained by perceived control over subjective wellbeing and adjusting the focus of control. The data allowed us to identify strategies that promote a sense of control in these patients. Conclusions: The illness, according to the participants, was experienced as series of losses. However, attention was often focused on areas where they continued to have control. These findings selectively reflect experiences of those who see themselves able to effect outcomes in life, suggesting future research should address how both family members and healthcare professionals can help to empower all patients.en
dc.format.extent10ca
dc.language.isoengca
dc.publisherSpringer Natureca
dc.relation.ispartofBMC Palliative Careca
dc.relation.ispartofseries21
dc.relation.urihttps://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-022-00984-7ca
dc.rightsThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.en
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subject.otherPacients avançats de càncerca
dc.subject.otherControlca
dc.subject.otherAutoeficàciaca
dc.subject.otherEstudis qualitatiusca
dc.subject.otherQualitat de vidaca
dc.subject.otherCures pal·liativesca
dc.subject.otherPacientes con cáncer avanzadoca
dc.subject.otherControles
dc.subject.otherAutoeficaciaes
dc.subject.otherEstudios cualitativoses
dc.subject.otherCalidad de vidaes
dc.subject.otherCuidados paliativoses
dc.subject.otherAdvanced cancer patientsen
dc.subject.otherControlen
dc.subject.otherSelf-efficacyen
dc.subject.otherQualitative studiesen
dc.subject.otherQuality of lifeen
dc.subject.otherPalliative careen
dc.titleControl in patients with advanced cancer: an interpretative phenomenological studyen
dc.typeinfo:eu-repo/semantics/articleca
dc.description.versioninfo:eu-repo/semantics/publishedVersionca
dc.rights.accessLevelinfo:eu-repo/semantics/openAccess
dc.embargo.termscapca
dc.subject.udc61ca
dc.subject.udc616ca
dc.identifier.doihttps://dx.doi.org/10.1186/s12904-022-00984-7ca


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This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
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