Show simple item record

dc.contributor.authorHerranz-Rubia, Nuria
dc.contributor.authorViolant, Veronica
dc.contributor.authorBalaguer Santamaría, Albert
dc.contributor.authorNoreña-Peña, Ana
dc.date.accessioned2021-05-12T17:48:18Z
dc.date.available2021-05-12T17:48:18Z
dc.date.issued2020-05-07
dc.identifier.citationHerranz-Rubia, Nuria; Violant, Veronica; Balaguer Santamaría, Albert [et al.]. Applying qualitative research to develop a guide for parents of newborns with hypoxic-ischemic encephalopathy. International Journal of Qualitative Methods, 2020, 19, p. 1-12. Disponible en: <https://journals.sagepub.com/doi/10.1177/1609406920923426>. Fecha de acceso: 12 may. 2021. DOI: 10.1177/1609406920923426ca
dc.identifier.issn1609-4069ca
dc.identifier.urihttp://hdl.handle.net/20.500.12328/2535
dc.description.abstractModerate-to-severe hypoxic-ischemic encephalopathy (HIE) is a significant cause of neonatal mortality and permanent disability in surviving newborns. Therapeutic hypothermia (TH) is the only effective intervention to reduce these outcomes. Being a parent of these babies is a traumatic and strenuous event. To address these difficulties, parents need information and support. The aim of this article is to describe a qualitative methodological process followed to develop a guide for parents of a newborn with HIE receiving TH as an addendum to clinical practice guidelines. The guide based on the experience of parents of newborns with HIE is presented as 16 meaningful questions and a glossary. It provides information to parents about HIE, treatment and care, future outcomes, and coping strategies. The final version, in Spanish and English, has a didactic format with simple wording, parents’ verbatim queries, and illustrations made expressly for the guide. Furthermore, we think showing the methodological process we followed to develop the guide, detailing the difficulties that arose in doing so, and making the reflexivity of the researchers explicit may provide support for other teams undertaking similar projects. Likewise, this article illustrates in a practical way how the perspective of family can be incorporated into clinical practice guidelines.en
dc.format.extent12ca
dc.language.isoengca
dc.publisherSage Journalsca
dc.relation.ispartofInternational Journal of Qualitative Methodsca
dc.relation.ispartofseries19;
dc.rightsCreative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).en
dc.rights.urihttps://creativecommons.org/licenses/by-nc/4.0/
dc.subject.otherPediatriaca
dc.subject.otherInfants nadonsca
dc.subject.otherHipotèrmiaca
dc.subject.otherNeurologia pediàtricaca
dc.subject.otherInfants -- Mortalitatca
dc.subject.otherPediatríaes
dc.subject.otherLactanteses
dc.subject.otherHipotermiaes
dc.subject.otherNeurología pediátricaes
dc.subject.otherNiños -- Mortalidades
dc.subject.otherPediatricsen
dc.subject.otherBabiesen
dc.subject.otherHypothermiaen
dc.subject.otherPediatric neurologyen
dc.subject.otherChildren -- Mortalityen
dc.titleApplying qualitative research to develop a guide for parents of newborns with hypoxic-ischemic encephalopathyen
dc.typeinfo:eu-repo/semantics/articleca
dc.description.versioninfo:eu-repo/semantics/publishedVersionca
dc.rights.accessLevelinfo:eu-repo/semantics/openAccess
dc.embargo.termscapca
dc.subject.udc61ca
dc.subject.udc616.8ca
dc.identifier.doihttps://dx.doi.org/10.1177/1609406920923426ca


Files in this item

 

This item appears in the following Collection(s)

Show simple item record

Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission
provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
Except where otherwise noted, this item's license is described as https://creativecommons.org/licenses/by-nc/4.0/