Browsing Ciències de la Salut by Subject "Necesidades de los pacientes"

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    • Haemochromatosis patients' research priorities: Towards an improved quality of life 

      Romero-Cortadellas, Lídia; Venturi, Veronica; Martín-Sánchez, Juan Carlos; Toska, Ketil; Prince, Dianne; Butzeck, Barbara; Porto, Graça; Thorm Milman, Nils; HI/EFAPH Survey Committee; Sánchez, Mayka (Health Expectations, 2023)
      Background: Chronic diseases are associated with a range of functional and psychosocial consequences that can adversely affect patients' quality of life (QoL). Haemochromatosis (HC) is a genetically ...