Browsing Ciències Econòmiques i Socials by Subject "Malalties rares"
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Strategic discussion on funding and access to therapies targeting rare diseases in Spain: an expert consensus paper
(Orphanet Journal of Rare Diseases, 2023)Background: In recent years, significant advances have been made in the field of rare diseases (RDs). However, there is a large number of RDs without specific treatment and half of these treatments have ...